Yes, I have gastric NET caused by my autoimmune atrophic gastritis. One person commented on this site that this type of cancer is "esoteric," which made me laugh out loud. So true. It's been hellish even finding providers who've ever heard of this condition. NETs in general are rare enough, and mine, which is caused by my autoimmune issues, are even rarer. I've learned that many NPs and even doctors never bother to read lab reports or even look at my chart, and prefer to dismiss me and my symptoms. I was recently accused by an ignorant GI NP that I was "making up the diagnosis," because "there is no such thing as autoimmune atrophic gastritis."

Getting back to my NET, I was diagnosed in January 2024, and had malignant tumors removed during the upper endoscopy. I go in once a year to have more removed and biopsied. So far, everything has stayed in the stomach, and none has moved around. Or so they tell me (I've never gotten a scan), since the size of the tumors have been very small, under 1 cm.