I also have FND seizures and epileptic seizures and the first thing that I have found is I had to remove the PNES label. For me and actually my neurologist (not Mayo) it felt like this was a psychological issue. In fact, my local neurologist sent me to a psychologist to try to "fix me". Fortunately I went to the Mayo EMU and I was told that my clinical condition is considered FND seizures and it's not psychological, but biological. I wasn't making it up. It wasn't because of some type of psychological issue. It was just as real as the scarring on my brain from a TBI during a seizure. This helped me immensely!

I also participated in the Mayo PRC program which help to further explain my chronic condition and to elaborate deeper into what was going on in my brain. Once again it was biological not psychological. This clear delineation made me feel whole again and not like I had done something wrong.

The difficulty now is knowing what types of seizures I have and whether they are FND or epileptic seizures. What my wife does is film every seizure I have and send them to my Mayo neurologist and he can instantly pinpoint what type of seizure it is. I've taken this one step further and uploaded my seizure videos to an AI tool with all my MRI and PET Scans, my diagnosis, and my patient history and then have Gemini do an assessment of my seizure. I then share the outcomes with my Mayo neurologist. The accuracy is stunning. While even the most modern AI tools are not 100 percent this extra bit of diagnostic information helps me get a better handle on my condition. This is all thanks to the amazing Mayo team.