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FLOT chemotherapy? How many rounds?

Esophageal Cancer | Last Active: 13 hours ago | Replies (33)

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@sosereal

Hi - 🙂
For me the FLOT has gone pretty well. My 4th treatment May 2 then Folfox and Proton. Some slight nausea (additively increasing), neuropathy (soles of feet, fingers, tongue - taste) - all tolerable.
- Bring ice-ice packs for feet, and hands- fingers. Use compression socks. They can provide ice chips for your mouth. I also double up a size too small latex gloves.
- I believe that the supplements I take helps with energy and side effects. ( Bromelain and Ellagic acid powder ( mixed with Gatorade), Magnesium, Curcumin, Iron, B-complex, Ginger root and Lutein. It seems like every positive study on supplements has an opposing one. Check with your Oncologist.
- Don't loose faith. There seems to be so much sadness and negative vibes but there are many positive outcomes. Try not to get hung up on survival rates its a dark side.
- Get as much exercise as possible.
- Eat-Eat-Eat... We will loose weight through our journey!
- Keep a journal
- Checkout Zoom support groups here is one that I regularly follow.
- Ok...EC Zoom info: Call times never change.
Sundays, 9am Eastern
Wednesdays, 6pm Eastern
Here's a one-touch Zoom link to pop right in:
https://us06web.zoom.us/j/4550284795?pwd=UjBHQ0J2V1pOc21SOExTR2N1UXNpQT09
If this link doesn't work for you... use the Zoom app. Open it and use these codes:

ID - 455 028 4795
Passcode - tuiBE5

All my greatest prayers and wishes, I'm sure we will cross paths. RickK

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Replies to "Hi - :) For me the FLOT has gone pretty well. My 4th treatment May 2..."

Were you able to do the ice packs with FLOT? I know one side effect is cold sensitivity so the oncology said they wouldn’t be an option for my hubby. The sensitivity went away fairly quickly after round one but it might last longer moving forward (though I have hope that it doesn’t).

Thankyou!
Mark starts his 1st treatment May 6th. We meet with the surgeon tomorrow.

Our prayers and positive thoughts to you as well!
KarenM