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Is your Dr a cardiologist? Is he/she an aortic disease and BAV specialist?
I’m asking because I have seen in this forum big variations on frequency and type of monitoring. So you are not alone in your question.
I also have a BAV and had a 5.2 aneurysm that was repaired 5 years ago. My BAV was left during surgery because it was highly functional and the surgeon told me my still functional natural BAV would be better than any artificial valve. But I know that it will have to be replaced at some point.
My cardiologist, who specializes on the above, sees me every year after an echo he orders. He monitors the evolution of my valve and that is the main focus for him, if I still had the aneurysm I’m sure he would also order at least yearly imaging for it. He does order a full aortic MRI every 4-5 years to ensure no other aneurysms are appearing, so that tells you how certain Drs are more focused on monitoring than others.
I hope that helps as reference
All the best to you
Replies to "Is your Dr a cardiologist? Is he/she an aortic disease and BAV specialist? I’m asking because..."
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He is a cardiologist and says he has treated patients with BAV and patients with aneurysms. I had a cardiologist that I could not communicate with for the 1st few months. My uncle had stents put in for blockage and recommended his cardiologist. The new one is better than the first (as far as communication) I just thought his recommendation for no more imaging for 2 years seemed a little strange (although he said it would be an MRI because of the radiation from too many CTA's, and I agreed that that seemed like a good idea). Everything I'm hearing keeps pointing me in the direction of finding a congenital cardiologist, I recently found the AHA directory for congenital cardiologist. Is there a national register or a way to find aorta specialists?