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Oxygen and dryness

MAC & Bronchiectasis | Last Active: Apr 26 2:34pm | Replies (14)

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@scoop

@irenea8 Have you looked into phage therapy? Easier said than done, I know, especially, when you are ill. Are you continuing to submit sputum samples? And ramping up extra vials of hypertonic saline each session? Wishing you better days.

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Replies to "@irenea8 Have you looked into phage therapy? Easier said than done, I know, especially, when you..."

Thanks Scoop. Yes I actually did try Phage Therapy! Long story short it made me feel too sick. Not supposed to have side effects but it certainly can/does. It was not an easy process and took a long time dealing with them. The follow through on their part was very iffy and unsupervised and not as promised. Whereas the IV in the hospital had little side effects and worked quickly but just did not last. Regarding sputum, they did a test at the end of my hospital treatment in Feb with sensitivity testing. Normally my pulmo no longer orders sputum sample for me unless I request it. He says if you have Pseudomonas it tends to dominate and is territorial so to speak so other pathogens are less likely. It seems to be true since every sample in the past few years shows nothing but Pseudomonas. I do use extra saline in my morning clearance. Two vials.