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Addressing the psychological impacts of neuropathy

Neuropathy | Last Active: May 6 11:38am | Replies (47)

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@gus0557

Hello Ray,
Believe me and more believe me, I am living my hell on earth with my neuropathy. I am going through it all alone even though I have a wife and two children, a 26-year old and a 16-year old. I understand, off course to a certain extent, what you may be going through. It’s an absolute nightmare and heart wrenching when no one around you cares even a little to try and be with you. In my case, my neuropathy is progressing fast and I’m definitely in constant pain territory and not just tingling and numbness.
From all I’ve read so far, neuropathy is a highly misunderstood condition and the symptoms abound and depending on our respective bodies, each one of us has to put up with her/his own symptoms. And it varies from one person to another. It’s a very difficult condition to deal with.
Indeed, like you, I hope more people like you and me would join an open discussion on the psychological nightmare of dealing with neuropathy. I’m sure many others are going through the same situation.
Take care and thank you for hopefully having started a meaningful discussion for all those dealing with the psychological effects of their neuropathy.

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Replies to "Hello Ray, Believe me and more believe me, I am living my hell on earth with..."

Hi, Gus

One thing we could do is suggest a prompt and invite people to respond to the prompt. For example, a prompt like this:

"In the weeks and months following my PN diagnosis, I'd hoped to keep my condition to myself (other than to one or two family members), not letting friends and colleagues know that I was in pain or telling them that my wonky way of walking was merely fatigue. I was determined for people to see me as the person they'd always known. Today, however, many months (perhaps even many years) since my diagnosis, I sometimes wonder why I tried so hard to hide my PN from my friends and colleagues. After all, who was I fooling?"

If I were asked to respond to a prompt like that, I'd have oodles to say! 🙂

Ray (@ray666)