Spinal Fusion

Posted by joelaurie1 @joelaurie1, Nov 30, 2024

My surgeon has recommended Spinal Fusion. I'm currently taking envinity and have 5 more shots to go. The surgery would take place around April.
For some of you that have gone through this , please let me know how it went.
Thank You for any comments, Joe

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@bonnie111

Thanks for these words. I am having my surgery on the 29th on C3,4,5. I am petrified. I am so tired of being in pain. I ant my life back. Your remark “fear as our worst enemy” is so true.

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I hope the best for you!
The second surgery I looked forward to being put on the operating table because I knew it was going to be better in a several months (the years of uncertainty and anxiety waiting to get there was the worse part seriously).
I would think if someone has a lot of pain with spinal disc issues then you will be strong enough to get through the surgery recovery pain!
Let me know how how things are after your recovery!😊

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I had fusion L4-S1 in October of 2024. The pain from that surgery was unimaginable for at least 6 weeks. Still heavy pain at 3 months. It’s been a little over 6 months and I told my dr. that something isn’t right. He ordered a Myelogram and it shows the L5-S1 did not fuse, and loose screws on S1. I’m heartbroken. I hope you have a much better outcome.

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@vikkitennis

I too had the same diagnosis, spondy at L5-S1 in 2014. A top surgeon at UCSF.
You are correct as it "did the job" to straighten the spine, but nothing for pain. I recall talking to a PA affiliated with him on our way to a tennis tournament in 2016. They did their work, and I moved out of state. Since then, I have seen many ortho's and neurosurgeons, procedures, and fitted with a spinal cord stimulator almost two years ago. That too isn't helping.
All I can do is stay active, and work on PT exercises for now. I am seeing a neurologist at Mayo in Phoenix, and "jumping through the hoops" for insurance, to see what the next step is.

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Please elaborate on the spinal cord stimulator..I was thinking about it..

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@lisajanec

Please elaborate on the spinal cord stimulator..I was thinking about it..

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@lisajanec After a failed L4-S1 fusion April 2023 I also have a loose screw and was told it’s best to leave it alone . I finally had to get a Boston Scientific Spinal Cord Stimulator in January this year! After being in so much pain prior to installation I was 95% afterwards (felt amazing actually got to sleep in bed immediately after installation which I couldn’t do for 8 months) I occasionally used an air bed that I used to be able to go to Mayo in Minnesota. 4 days after stimulator was put in we boxed the air bed up and I bent to pick a magazine and pulled the wires loose (so much for a $78,000 surgery) I just had it redone 2 weeks ago they used leads the first time and paddles the second time, they just removed my staples and turned it on Thursday it still needs some more adjustments but I’m about 75% pain free.

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6 weeks ago I had a cervical fusion c4-7. Still having issues hoping it is because it may take awhile for nerves to heal has anyone else had a similar surgery? Called ACDF surgery

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@lisajanec

I had fusion L4-S1 in October of 2024. The pain from that surgery was unimaginable for at least 6 weeks. Still heavy pain at 3 months. It’s been a little over 6 months and I told my dr. that something isn’t right. He ordered a Myelogram and it shows the L5-S1 did not fuse, and loose screws on S1. I’m heartbroken. I hope you have a much better outcome.

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So sad! I hope you can get this situation rectified. What was the reason for the fusion? I, too, had a fusion at L5-S1 eight years ago to correct(supposedly) spondylolithesis. It was a tough recovery, but it never provided any relief. What troubles me, looking back, is that two previous MRIs did not show any such condition. It was labeled the infamous "Failed back surgery syndrome". Wish I had been a little more savvy back then.

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@sbtheplumber1

@heisenberg34 I had a Fusion at L4-S1 April 2023 I would about fall when I bent over ( now I wish I took my chances of falling) the surgery was great at first then I was twisted and a screw come loose 3 weeks later. Not sure if your M/F but I have new pain that radiates to the testicles, I can have a bowel movement stand up and brush my teeth and have to go again. I went thru pelvic therapy to help realign the tailbone which I learned when it’s out of alignment the bowels don’t move. I don’t go anywhere without a cushion to set on and the tailbone is so tender I slept in a recliner for 4 months and now I’m able to get by on an air mattress. You might consider pelvic therapy - definitely no fun for a straight male lol) but I’m at the point who cares if it helps then I’ll try it.

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I'm female, have had a out 15 years of lower back pain. I did have one 7 hour surgery and had a cage put in around the lower part of spine and cushions between disks. Was slow moving after, but a lot less pain. Then the pelvic area started with some major pain. Long story short, I've had the spinal cord stimulator put in, and have about 60% less pain in the whole lower back. now being female I just had vertebroplasty procedure for fractured disks. No one prepared me for the hammering -Not fun. I also have a 20 degree curve at the bottom of my spine, and lots of arthritis. Gabapentin helps me as well. Good luck to you. There are so many of us dealing with back pain.

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@sbtheplumber1

@lisajanec After a failed L4-S1 fusion April 2023 I also have a loose screw and was told it’s best to leave it alone . I finally had to get a Boston Scientific Spinal Cord Stimulator in January this year! After being in so much pain prior to installation I was 95% afterwards (felt amazing actually got to sleep in bed immediately after installation which I couldn’t do for 8 months) I occasionally used an air bed that I used to be able to go to Mayo in Minnesota. 4 days after stimulator was put in we boxed the air bed up and I bent to pick a magazine and pulled the wires loose (so much for a $78,000 surgery) I just had it redone 2 weeks ago they used leads the first time and paddles the second time, they just removed my staples and turned it on Thursday it still needs some more adjustments but I’m about 75% pain free.

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Your fusion failed in one area? Mine was the L5-S1.
And screws loose. I talk to my dr. about the myelogram results on May 7th. Your dr said to not have revision surgery?

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@lisajanec

Please elaborate on the spinal cord stimulator..I was thinking about it..

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I got one about a year ago, and I believe I have about 75% less pain!! It was well wrth it. I had tears when I realized the practice one was working after about 4 days. Then I had to wait a month to get the real one. Good luck to you!

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@lisajanec

Your fusion failed in one area? Mine was the L5-S1.
And screws loose. I talk to my dr. about the myelogram results on May 7th. Your dr said to not have revision surgery?

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@lisajanec At 3 weeks I was accidentally twisted by a friend ( it didn’t seem to bother me ) then the next week his NP said it might be a set back but you can start twisting bending and lifting up to 25lbs. I went home that night and bent to dry my lower legs and had a burning sensation in my back (probably screw coming loose ) 2 years later I’m still suffering from it. Before the next visit the nurse had gotten one of them to do an X-ray or mri because the pain was getting worse and I go to see him and he says why are you here and I explain if I rub my tailbone it goes right to the testicles . Not even getting me out of the wheelchair he says no you don’t ! He put that it was a failed fusion and said get a stimulator . My doctor doing my stimulator agreed with me and sent me to another surgeon which I saw another one as well there while admitted to the hospital , they both looked at the test from 6 months ago and said they don’t see anything. He sent me to another one that said it was my hip so I went to a hip doctor who laughed and said no it’s not it’s your back. I finally about 18 months after my fusion went to Mayo and was told I have the screw loose at L5 and not to do any revision. When he fused me he couldn’t put the screw in L5 right side because it blew out. I went to 2 more surgeons and finally had the stimulator it’s helped tremendously but I still have bowel issues and have read some of problems seek help immediately and they just say no you don’t have that go see a gastro doc or urologist.

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