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Addressing the psychological impacts of neuropathy

Neuropathy | Last Active: 1 hour ago | Replies (35)

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@andyjustin

I appreciate that. I think I was just trying to break up the point that no one really talks about how they’re feeling mentally and adjusting to whatever form of neuropathy they have I would love to see more people express their feelings on this in these chat rooms

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Replies to "I appreciate that. I think I was just trying to break up the point that no..."

It's very lonely to have neuropathy pain. I am 9 years cancer free but chemotherapy left me with my hell on earth. I have tried everything without success. I now have constant ringing in my ears too and there is no relief for either. I pray about it a lot.

I have had my neuropathy for about five years. It has been progressive, starting with numb feet and fingertips, now it’s my full legs and has been very painful. I could walk independently until about a year ago. Now I need a full time walker. I think this past year has been my worst psychologically. I have been to some very dark places with reality settling in as to what I can and can’t do now. How I can and can’t live now. My balance is totally gone. I have a beautiful grandson that I have never been able to pick up. I’ve only seen him twice in two years. I was trying to muster up the courage to go see them next month for his birthday but after seeing my neurologist the other day I am going through another round of full spinal MRI and other tests two days before his birthday. I’m not sure what got me out of the blackness but I’m not dwelling on the negative so much. With spring coming I am loving the rebirth of our surroundings. I have a boyfriend that takes very good care of me and for now we’re ok. My Dr. still gives me hope so we’ll see. Sometimes it’s hard to read these entries seeing how long people have suffered, but I learn from them what helps. Good luck to all.