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@mxyzptlk32

I spent the last 6 hours or so reading these posts and came away with a couple of things 1) I didn't know there were epilepsy specialists. Since I managed to have a tonic clonic while at the Mayo clinic about 10 years ago they already have a file on me. I may give them a call and see if they would like to see me. 2) Someone mentioned having had IVIG and Rituxan therapy which I found interesting because I had it too but for Idiopathic Thrombocytopenia Purpura (ITP) a fancy way of saying they don't know why but I didn't have enough platelets. I certainly didn't know it could be used to treat epilepsy. 3) No one has mentioned CPAP as a treatment so I will. Lack of sleep is a trigger for me. I also snore. Years ago I had a sleep study done and it was found I had borderline sleep apnea. I was given a temporary CPAP machine while the particulars were worked out with my insurance company. What I found was the CPAP therapy improved my sleep quality to such an extent my complex partial seizures disappeared. The insurance company eventually agreed to pay for it due to this as opposed to my sleep apnea diagnosis. What I found out is the quality of sleep matters. Bring on the Rapid Eye Movement (REM) please. 4) Almost any medicine I have been put on works perfectly for me (complex partials disappear) and then it seems my body adjusts and they return. My tonic clonic are well controlled at all times. 5) When folks are talking about a seizure here I assume you are talking about the tonic clonic variety as opposed to the little "twitches" (complex partial) I have which lasts for a split second and most uneducated folks don't even notice. I have been tired since I was 7 years old (I just turned 65). Tired is normal for me.

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Replies to "I spent the last 6 hours or so reading these posts and came away with a..."

I want to look into that CPAP more. I've made an appointment twice but both have been cancelled. Once due to the virus and one she cancelled for other reasons. Time to check into other doctors who treat the problem.