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Living with epilepsy - Introduce yourself & meet others

Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)
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@jakedduck1

@heal33
Welcome to Mayo Connect Linn, nice to have you with us.
Wow, 40 years of seizures with no control, unfortunately I know what it’s like. I’ve had Epilepsy for 53 years and frequent generalized seizures for 44 years. I’ve had some close calls during partials (Focals.)
Going to the Mayo Clinic Epilepsy Center and consulting with an Epileptologist sounds like the best decision you could make.
Here is some information on the Mayo Clinic Epilepsy Center in Rochester Minnesota.

https://www.mayoclinic.org/diseases-conditions/epilepsy/care-at-mayo-clinic/mac-20350102

Also if I were you I’d ask the Neurologist about DNA testing (Pharmacogenomics) for the best seizure medication and dose. Here is some information from Mayo Clinic.

https://www.mayo.edu/research/centers-programs/center-individualized-medicine/research/translational-programs/pharmacogenomics

Wishing you the best of luck,
Jake

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Replies to "@heal33 Welcome to Mayo Connect Linn, nice to have you with us. Wow, 40 years of..."
heal33 | @heal33 | May 13, 2020

Thanks for the info. I've never heard of pharmacogenomics.

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