@heal33
Welcome to Mayo Connect Linn, nice to have you with us.
Wow, 40 years of seizures with no control, unfortunately I know what it’s like. I’ve had Epilepsy for 53 years and frequent generalized seizures for 44 years. I’ve had some close calls during partials (Focals.)
Going to the Mayo Clinic Epilepsy Center and consulting with an Epileptologist sounds like the best decision you could make.
Here is some information on the Mayo Clinic Epilepsy Center in Rochester Minnesota.
https://www.mayoclinic.org/diseases-conditions/epilepsy/care-at-mayo-clinic/mac-20350102
Also if I were you I’d ask the Neurologist about DNA testing (Pharmacogenomics) for the best seizure medication and dose. Here is some information from Mayo Clinic.
https://www.mayo.edu/research/centers-programs/center-individualized-medicine/research/translational-programs/pharmacogenomics
Wishing you the best of luck,
Jake