Hi, Sue,

You were just my second mentor story to pull up and I was excited, tho not happy, about our same challenges. BE, psuedomonis and MAC.

The reason I would like a mentor is because my far away sister in DE also has it, later found after me, so we are our sole supports. However, she has alot on her plate with taking care of an invalid 90 year old husband who is not fond of me nor I am of him. I would like another supportive place to hear other's research and info of people's personal challenges.

I have depression and assumed my fatigue and sleeping alot was my problem. Now I hear the word fatigue used alot and from my sister.

Since a contentious divorce 20 years to present, my children, now in 40s favor their beer drinking abusive father as if they had to take sides. Now I have 4 grandchildren who are far away tho I still get daily pictures and videos, even tho my daughter is taking a break from me. My son, far away doesn't talk much, but I see him once a year and sometimes do facetime and he calls me twice a year, an improvement.

I guess to sum up, I have all these health challenges with no family and I've chosen to let friends drop out, and use to be the social organizer with many friends. This disease I realize and heard from you can cause fatigue. I'm really grateful to have an answer to my years of fatigue.

I live in CT in a lovely condo, but with stairs. Because of my sedentary life at 77, I've gained too much weight. I've been granted at home occupational therapy for strength building and soon some specifically for lower back issues, arthritis and weak.

I feel good, tho, because I'm progressing with exercises and less depressed and lonely. But this medical site for BE and infections has really help so much already hearing other's experiences and I love learning new things.

Reading these stories I don't feel all alone. And I'm finding other groups to join for weight loss and chronic diseases. I had faith that more would open up for me but my depression said differently.

What helps me most is my faith and sister and I sending 5 gratitudes a day to each other.

I just miss having a family, tho glad to be divorced. Everyone suffers and I know how blessed I am with great doctors and now this site.

As you can see, I write alot, probably because I only have my sister to connect with. I really connected with your story, which helped me accept my fatigue and sleeping so much. If you had some time, energy and desire to write back, that would be nice and helpful. I try to support my sister but I dont want to be this sick sister to her and my two close friends. Do you have a mentor? I have a great therapist, pt gal and great pulmonoligist. Do you have an infectious disease docs?
Have you had BE and infections for long? Do you know how you got it?

Weekends are tough when friends aren't available, but I enjoy my own company, just not all week long. 😊

It sounds like you have a nice family system, which is unusual to hear, and that gives me hope.

Thanks for listening and thanks for your story.😇