Hi everyone,

I am 65. I’m grateful to be here and connect with others who understand this rare condition. I was recently diagnosed with Orthostatic Tremor (OT) by a neurologist specializing in movement disorders. It’s been a long journey trying to make sense of symptoms like leg tremor and unsteadiness when standing still — symptoms that improve when I move, sit, or lie down.

I also experience significant fatigue when standing, as well as chronic back and hip pain related to a double lumbar fusion I had in the past. I’m working with both a neurologist and a sleep specialist to manage overlapping issues, including REM behavior disorder (RBD), and it’s likely that we’ll be adding clonazepam to my treatment plan soon. I’ve also recently started taking propranolol.

I’m still learning about OT and how it relates to the rest of what I’m experiencing. I look forward to hearing from others and learning how you navigate life with this condition.

Thank you for having me!

Warmly,

Cesar