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@volmania97

I was diagnosed two years ago with FTD and suspected CTE. The problem I’m having now is body pain, especially under my arms and itching all over. I know my blood enzymes and hemoglobin is elevated. Does anyone have any idea what this might be causing the symptoms?

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Replies to "I was diagnosed two years ago with FTD and suspected CTE. The problem I’m having now..."

@volmania97

Did you have accidents/injuries to your brain? How long ago did your symptoms start and what triggered them? My teenage son had a couple concussions when a child and his family genetics make him at a higher risk of dementia/Alzheimer's.

What are your current symptoms other than your bloodwork results? Are you working with a neurologist now? Did you have a recent MRI of your brain and cervical spine? Have you had a small fiber neuropathy skin punch biopsy? Small fibers can affect autonomic nervous system/heart/lungs/digestion.

Have you had an EMG/nerve conduction study of your upper and lower limbs?

I read that your bloodwork may be tied to low oxygen levels. Do you have any breathing issues? Do you feel tired/fatigued easily? Have you been tested for sleep apnea? Any brain damage can affect the functioning of organs due to disrupting communications from brain through spinal cord to organs and limbs.

1. https://www.mayoclinic.org/diseases-conditions/chronic-traumatic-encephalopathy/symptoms-causes/syc-20370921
2. https://my.clevelandclinic.org/health/diseases/17686-chronic-traumatic-encephalopathy-cte
3. https://www.health.harvard.edu/mind-and-mood/what-is-cte-understanding-chronic-traumatic-encephalopathy
4. https://www.healthline.com/health/overview-of-chronic-traumatic-encephalopathy-cte
5. https://www.mayoclinic.org/diseases-conditions/frontotemporal-dementia/symptoms-causes/syc-20354737
6. https://my.clevelandclinic.org/health/diseases/21075-frontotemporal-dementia
7. https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/frontotemporal-dementia
8. https://www.theaftd.org/what-is-ftd/disease-overview/
9. https://www.mayoclinic.org/symptoms/high-hemoglobin-count/basics/causes/sym-20050862
10. https://my.clevelandclinic.org/health/symptoms/17789-high-hemoglobin-count