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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Hi all,
I am 56 years old and have recently been diagnosed with Epilepsy after experiencing a tonic clonic seizure back in October. Testing confirmed TLE on my right side. I have been on Keppra and experienced a lot of side effects the first few weeks but things got better. I do think my mood swings are related to the pill and that is difficult to deal with at times. My question to the group is this: I experience a tingling sensation on the right side of my head at random times. It will last just a few seconds but it’s very noticeable. I had a 3 day EEG to see if they could capture that moment, but of course it didn’t happen. Does anyone else experience this sensation? I’m not sure if it’s from the Keppra or some form of a dampened seizure? I never experienced this sensation before all of this happened.
Thank you.
Replies to "Hi all, I am 56 years old and have recently been diagnosed with Epilepsy after experiencing..."
@frosty27
Hello Frosty,
First of all I’d like to welcome you to Mayo Clinic connect.
You said testing confirmed TLE (TLE temporal lobe epilepsy.) I assume your EEG was abnormal showing seizure activity in your Right Temporal lobe or do you have a structural abnormality like a lesion on or near your temporal lobe?
May I ask what dose of Keppra your taking and how frequent your seizures are? I agree Keppra may be having an effect on your mood. Keppra is notorious for causing those issues. I have known many people who have had to stop taking it because their symptoms were so severe. Are your mood issues improving over the last few months? Has your neurologist ever mentioned anything about possible focal aware seizures causing your tingling?
Do you ever have Auras prior to your Tonic-Clonic Seizures.
I know this isn’t very helpful and I’m sorry I posted so late I thought I had it posted but that’s what happens when I think.
Take care of yourself,
Jake
Connect
Hello, @frosty27, and welcome to Mayo Clinic Connect. Thanks for sharing about your recent epilepsy diagnosis and the levetiracetam (Keppra) you are taking. I moved your post here to this discussion so that you can meet others who are living with epilepsy.
I'm guessing members here can tell you if your experience having side effects the first few weeks of taking levetiracetam (Keppra) also occurred in their cases, and hoping they also have some input for you related to the tingling sensation on the right side of your head at times. Please meet @jakedduck1 @crstyday40 @ryman @robertjr @dawn_giacabazi @bonnieh218.
Did your neurologist have a theory on the tingling sensation? If so, what did he or she think it might be?