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@hopeful33250

Hello @ds231 and @sammydj and welcome to the NETs support group on Mayo Connect. I am glad that you found this forum. It is a great place to learn from the experiences of others who are walking down this path. As NETs are not like typical cancers, the treatments are also different. As you are both new to this forum, I would like to invite you to attend a virtual NETs support group meeting next Thursday, May 1. Here is a link with information and the Zoom link,
https://connect.mayoclinic.org/comment/1289799/
@ds231
Would you share a little about how your diagnosis of neuroendocrine small cell lung cancer was found. Were you having breathing symptoms or a chronic cough?

@sammydj
How is your dad feeling now that the shots are less effective? Has he had any other treatments for his NETs other than the monthly shots?

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Replies to "Hello @ds231 and @sammydj and welcome to the NETs support group on Mayo Connect. I am..."

Everyone laughs when I tell how mine was found. We had just ourchased a RV and we're getting ready to hit the road for how ever long we could when my dog started sniffing my breath then laying his head on my chest, he wouldn't leave my side and he did this over and over. I had been really sick, I had somehow caught C-diff and felt pretty bad but was getting better. But afyer days of my dog acting this way I told my husband I'm going to see about my lungs before we take off. My doctor ordered me a CT scan to appease me and 2 hours after I had it they were on the phone saying I needed a PET scan immediately. So that's how my journey started, my dog saved my life. I never did have a cough, but did have pain in the spots where the cancer was found. I just racked it up to old age aches and pains..lol I can say my dog is pampered now more than most..lol