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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
1710dave
First of all, I’d like to welcome you to the Mayo Clinic Connect Forum. I spotted your post right away and replied but I did something stupid and the post disappeared, do that’s why the delay.
Yes, if it were me I would find a Neurologist who specializes in Epilepsy even if your seizures are under control. You probably know the unpredictability of seizures so who’s to say what could happen in the future. I always feel more comfortable with a specialist. Unfortunately, and I’ll probably get in trouble for saying this but it’s true, there are neurologists out there who are dumb as dirt and they care just about as much.
If your seizures are uncontrolled and no one has been able to decrease their frequency or severity I would recommend going to an Epilepsy Center to see an Epileptologist. Now it’s time for the inquisition, I’ll try to keep it short and give you a break since you’re new. Do you know what type of epilepsy you have? What type of seizures do you have? What medications are you on? Do you have nocturnal seizures? How long have you had epilepsy? Have you had the usual blood tests, MRI or another type of imaging or EEG? Were they normal?
Take care,
Jake
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Hello Jake,I had my first seizure 1/5/14 lasted approx.30 minutes.The eeg test read that the eeg is consistent with a focal area of neuronal dysfunction in the right frontal region that has increased epileptic potential.All other test are normal.i have had one grand mall about once every two years,two were at night and two during the day and they last about 20 minutes.The last one I had I could hear people talking to me but I could not see anything and it lasted 10 minutes.I am on 500mg keppra twice a day.I have had health issues for the last 20 years and no doctor could find anything wrong.I did some research and all the issues I had where listed under mercury poisoning from amalgam fillings from the dentist.No doctor will even talk to me about possible mercury poisoning,they will not even admit it is a neurotoxin.After I bring up mercury half of the doctors would not see me anymore.I have tried detox myself and that is when I had another seizure.I am still looking for a doctor that isn't so narrow minded .The night I had my first seizure is the only time any test were ran.since then when I go to the doctor they do nothing just refill the prescription.Thank you for getting back with me.Hope I didn't make this too long.
Thank you
Dave