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Replies to "I’m finding it so difficult trying to decide what I should avoid or change in order..."
If you ask Dr Falkenham how risky it is in an email, he’d let you know. I did that about white water rafting. He didn’t say go/don’t go, but explained that water that has just run thru tree roots probably has increased MAC. I’ll do the family day trip and avoid seats that take more spray.
@jannah I am in the same boat. My family has a vacation home that is located directly across the road from a large coastal estuary. I have hiked along the estuary, kayaked in it, all before MAI diagnosis of course. Now I am not sure it is even safe for me to go and stay at the house. Of course I live in the SF Bay Area, and the bay is one huge body of brackish water (which I confess I had no sense of before my MAI diagnosis). For decades I ran along the Bay, every day, for exercise. It is certainly a question in the back of my mind as to whether that is how I picked up my MAI infection … no way to know which makes judgement calls around possible exposure sources so challenging.
I am in the same boat. Just got diagnosed last December and still trying to figure out my new reality.