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Living with epilepsy - Introduce yourself & meet others

Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)
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@jb24

Hello, I am new here. I am JB24. I am not sure how to make a new post for everyone to introduce myself ? I have a 29 yr old daughter who was born with GE, grand - mal seizures. Also she falls under the Autism Spectrum. I have been and am her mother, advocate, caretaker, and Legal Guardian. I have never had others to talk to about this who understand except Doctors and Neurologists, who in our years of experience haven't helped enough. Simply want to control her seizures. Even with years of experience I still have many questions! : ) So, if you could show me the ropes of getting around in here, I would sure appreciate it. Glad to be here. Thank you!

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Replies to "Hello, I am new here. I am JB24. I am not sure how to make a..."
Lisa Lucier | @lisalucier | Jan 21, 2020

Nice to meet you, @jb24, and welcome to Mayo Clinic Connect. This discussion on living with epilepsy is a great place to start. More info on Connect can be found on "Get Started on Connect" in the gray box at the bottom of any Connect page.

Connect also has an Autism group you might check out for those living with autism as a patient or loved one of someone with the diagnosis https://connect.mayoclinic.org/group/autism/

I'd like you to meet @crstyday40 @amieejean
@hhannah2000 @jakedduck1 @decembersun79 and others, who may have input on your 29-year-old daughter and getting some control of the seizures from their own experiences.

When you said in your years of experience the doctors haven't helped her enough, is this with seizure control, advice managing day to day life or safety, the medications they have prescribed?

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