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Really needing some hope and guidance right now

Esophageal Cancer | Last Active: 22 hours ago | Replies (22)

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@rocketman521

Hey Lulu,
I was diagnosed with stage 3 adenocarcinoma in January of 2024 at age 37, so I have a bit of perspective on being younger with this diagnosis. Try not to spend too much time dwelling on percentages as the outlook on this cancer has improved over the past few years coupled with the fact that you're younger really improves the prognosis. My 2024 was wild with 6 weeks of chemo/radiation, followed by an esophagectomy in June. My swallowing trouble progressed pretty rapidly, I was really grateful that I decided to put a feeding tube in prior to beginning treatment event though it can be a major pain at times. I'm still undergoing monthly OPDIVO infusions just to ensure that any small cancer cells that could have been floating around get cleaned up. The road to recovery is super tough, but there is a road to recovery, so just focus on that! Let me know if you have any specific questions, I could probably write a book on all the craziness of the last year.
Nate

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Replies to "Hey Lulu, I was diagnosed with stage 3 adenocarcinoma in January of 2024 at age 37,..."

I hope you’re doing well now. From just the couple of weeks that I’ve known have been a little scary. So can’t imagine what you went thru and what I’m about to. I was formally staged yesterday at Stage 3 adenocarcinoma. I asked my dr about a feeding tube and he said as long as I can tolerate shakes and soft foods (VERY FEW OF THEM I CAN TOLERATE) that I should try to avoid it as long as I’m getting nutrients and not losing anymore weight. I had gastric sleeve in 2021 so if I get a feeding tube it most likely won’t go there. Hopefully i should start chemo in the next week or two to get this cancer to shrink. May 5 I will get my PET scan