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Tapering prednisone

Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (26)

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@farnhamlaf1

Wow pretty fast from 20 to 10. I’m down to 10 from 30, 25, 20 then 12.5
Upper torso an shoulders are stiff/sore I want to keep going am not go back up
I hope it levels out

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Replies to "Wow pretty fast from 20 to 10. I’m down to 10 from 30, 25, 20 then..."

People who can taper off prednisone quickly are my hero. I used to be able to taper off quickly but after PMR was diagnosed I couldn't any longer. Sometimes I think it was the 6 month delay in being diagnosed with PMR while prednisone was being restricted. I understand why prednisone was restricted even though I was self medicating with prednisone for 20 years before PMR was diagnosed.

It was a comedy of errors. I went to my wife's primary care doctor only wanting a prescription for prednisone. My wife went with me because she didn't want me to leave out any details. I wasn't going to say I was self medicating and was only going to say I needed prednisone. My wife's primary care doctor agreed with my wife. She wasn't going to prescribe prednisone but said I needed a rheumatologist.

When I saw the rheumatolgist a couple of months later, the first rheumatologist said I had a problem that wasn't treated with prednisone. Eventually another rheumatologist stepped into the fray. She thought I had PMR and said I needed to take prednisone long term instead of a couple of weeks.

I think when I started to take prednisne long term, that wiped out whatever adrenal function I had left. Then I wasn't able to taper off prednisone for 12+ years.

After all those years of PMR being treated with Prednisone another rheumatologist wanted me to try something different. I was switched to something else and tried to taper off Prednisone. It took time for my adrenals to recover but eventually I managed to taper off Prednisone.