I am suprised that a fusion of L5-S1 was attempted especially since L4-L5 was also fused. With both fused, there is no level remaining in the lower spine to allow or facilitate the amount of movement that the lower spine needs to make. I am speaking only from my own experience; I am not a medical professional and certainly not a spine surgeon. I am fused from L2-L5. I have significant pain from osteoarthritis at L5-S1. The brain/spine surgeon I see has said that any attempt at fusion of L5-S1 would result in a "failed fusion." He would guarantee it; therefore it was not an option to even consider. So I have been living with the pain and lots of Tylenol (not exceeding the maximum recommended dose), and considering the possibility of a spinal cord stimulator.

hmmm spinal cord stimulator, will have to look that up.

@lisajanec
I had decompression and fusion of L3-L5 in 2024 and many of my symptoms have improved (pain/weakness/numbness lower back, hips, buttocks, legs and feet). I have heard of many who get fused at L5-S1 and have failed fusions and pain. I have limited ability to twist and need to be careful when I do bend down to lift or reach for something. I have some L5 nerve roots exposed and being irritated and some issues with my L5-S1 joint causing radiculopathy and at times I lose control of my foot. My surgeon never suggested to fuse this level.

Have you tried cortisone injections? Do you use Salonpas lidocaine nerve pain patches for temporary relief? Does ice or heat help? I’m not sure if physical therapy would help you strengthen other parts of your body/core to better support your spine and reduce pain.

The person I know who had a failed L5-S1 fusion just recently had a spinal cord stimulator put in and he said it has helped him a lot deal with significant nerve pain.

I do use the lidocaine patches and will review the spinal cord stimulator with my dr. Thank you for this reponse, although I don’t want anyone to have pain, it’s helps to know I’m not alone out there 😊

I am 20 yrs old and I had my L5 and S1 "fused" July 2024, my pain has been worsening since. My hardware is intact, the left side is fused while the right isn't. Yet this isn't the source of my pain according to my doc. I am currently in pain management, I use a heating pad and heated seats, I can't work anymore even in pain management. I tried patches, injections, muscle relaxers, gabapentin, tens unit none of those helped. I am thinking about asking my doctor about a SPECT-CT (supposed to help locate pain on a specialized ct scan).

I hope that you can find some relief some type of way, back pain is the worst. I wish there was a better working treatment instead of the fusion surgeries.

Thank you so much! I believe that the first fracture was caused by me doing a backbend and falling I was 11, I just remember having back pain ever since that night. The second was like a month before the surgery. I was at work and backed up into the corner of a table and it was where the first fracture was so it broke the same vertebrae in a different place. I have done so much research from reversal surgeries, revision surgeries, spinal cord stimulators, etc.

@lisajanec Hi, Lisa it would help to know the date of Ur surgery. As well as your condition proceeding it... Also when the pain and balance issues started. Thanks

I'm just saying and this statistic is from PUB MED a respected Govt. website... epidural fibrosis has been reported to be the culprit in up to 46% of cases of Failed Back Surgery Syndrome (FBSS), a chronic pain condition found in up to 20–54% of patients who receive back surgery. Now obviously different sources will provide varying stats. But if this is even Close to the actual numbers. This should be being discussed and suspected much much earlier than it appears to be. GOOGLE : Percutaneous epidural adhesiolysis. This seems to be the least invasive form. I'm going to pursue it and hope it produces noticeable results. As I'd love to see more people relieved of this neuropathic nightmare... Myself included. 😉