Connect
← Return to Living with epilepsy - Introduce yourself & meet others
Discussion
Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
For many years I was experiencing vertigo. As I got older it got more frequent and for longer durations. About three years I went through all sorts of testing to see what is causing it. The final test was an EEG. I was diagnosed with partial complex seizure disorder presenting as Vertiginous Epilepsy. Since then I have been being treated with 150m x2 of Vimpat. I have had two Clonic Tonic seizures that I went to the hospital for. Each EEG I have still presents seizure activity. I have an appointment to see my doctor in two weeks. I’m wondering if I should talk to him about other treatment options? Is this a controllable disorder by diet and other natural methods, such as sleep, etc.? Any experience/ advice?
Replies to "For many years I was experiencing vertigo. As I got older it got more frequent and..."
@debirwin
Good morning,
Do you know your seizure trigger? Is it a sound or a certain movement or another trigger? Has your doctor mentioned if you have TLE (Temporal Lobe Epilepsy) or a Reflex Epilepsy? You said your seizures were Complex Partial (Focal Impaired is the new terminology.) Do you remember anything that happened during the seizures?
I knew a man in Canada who was able to control his Epilepsy with vitamins & minerals. The site below was created for children with drug resistant Epilepsy but has some good information.
http://www.thedaisygarland.org.uk/epilepsy-and-vitamins-minerals
A few things that may help.
1️⃣ Lack of sleep is a major trigger.
2️⃣ Don’t consume to11 much alcohol (If any)
3️⃣ Control Anxiety & Depression
4️⃣ Have Vitamin D level checked. Nearly half the people with Epilepsy have low Vitamin D
5️⃣ There are herbs that some believe makes Seizure meds more effective.
6️⃣ Cut out Nicotine
7️⃣ Cut out or lower caffeine, only caffeine I get is from my candy. The one vice I can't shake.
8️⃣ Ketogenic Diet
9️⃣ Extracranial neurostimulators
🔟 Exercise and eat healthy.
11 There are Neurostimulation units that may help. (Neuropace)
Here is a recent video from Mayo Clinic doctors answering some epilepsy questions.
https://connect.mayoclinic.org/webinar/video-qa-about-epilepsy/?pg=1#comment-342281
Jake
Connect
I understand what you are saying. I have had quite a few LOC due to migraines and now I have a pinched nerve in my neck that I have to be careful with. However, I would definitely ask your neurologist and/or primary care physician regarding a diet that may help as well as meds.