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@passang

Thank you for welcoming me, yes I too have Epilepsy plus panic attacks. But I don't know what kind of epilepsy is it. Most of the time I get headaches, dizziness, scary and after that my eye gets blur. Unable to breath and loss the body control after that I don't know what happened to me. When I get to my sense my mouth will be wounded and tongue bitten.
Medicine =
1. Sodium Valporite 400mg
2. Phenytoin 300mg
3. Amitriptyline 75mg
4. Vit B & C and
5. Propranolol 20mg
are my treatment till now.suggest me what should I have to do?
PLEASE HELP ME!
As our country is small and under-development it is hard to understand

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Replies to "Thank you for welcoming me, yes I too have Epilepsy plus panic attacks. But I don't..."

Hi, @passang. I'd like to join @jakedduck1 in welcoming you to Mayo Clinic Connect.

Since you mentioned you have epilepsy and panic attacks, I wanted to offer some Mayo Clinic information on these. Perhaps the one on epilepsy will shed some light for you on what type of seizures you may have.

- On epilepsy https://www.mayoclinic.org/diseases-conditions/epilepsy/symptoms-causes/syc-20350093

- On panic attacks and panic disorder https://www.mayoclinic.org/diseases-conditions/panic-attacks/symptoms-causes/syc-20376021

As we are not medical professionals, we can't suggest treatments. However, we connect patients who have similar disease circumstances. We find members are very supportive of one another as well as often provide some useful insights, as they have "been there." Please meet these members and others in this discussion who have been talking about epilepsy in themselves or a loved one, such as @dap @bruceg @mmas @pamelastewart5 @1634517678. I'd also like to introduce you to @dawn_giacabazi and @johnbishop, who also may have some input for you as you seek some answers about what kind of epilepsy you have and how it might best be treated.

How have the medications you've used so far worked for managing your symptoms, passang?

@passang
It sounds like your having Tonic Clonic (old term is Grand Mal) Seizures since your bitting your tongue. Do you sleep afterwards or are you tired, aching or confused? Possible Focals but not enough info for an educated guess. There are Focal Seizures consistent with some of your symptoms.
Are you still having seizures? Are you having fewer seizures since you began taking your medicine?
Have you had an EEG or an MRI or CT scan? If you’ve had any EEG’s have they been normal or abnormal?
Another thing I’m concerned about is if your seizures could be caused by Psychological reasons and are possibly Psychogenic Non-Epileptic Seizures.
Here is an article about Focal Seizures (Partials) that may appear to be Panic Attacks.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1118775/#!po=2.63158

If you read about Epilepsy you’ll probably see most references mention 3 phases, however in my opinion there are 4. Not everyone experiences Auras (Phase 2) and even
fewer experience Prodroma (Stage 1)
Many supposed experts

(Phase 1.) PRODROMAL
These symptoms happen minutes to days before a seizure and can vary between people and seizure type. They can include among others, headache, Irritability, Depression, Insomnia, agitation,
Concentration issues, Lightheadedness, Vertigo, Dizziness, Mood changes, Overly tired, Intestinal or Urological symptoms.

Phase 2. AURA

Not everyone has Auras. I’ve had over 13,000 seizures and have never had one. They can include, sudden weird light, smell, taste, thoughts, deja vu, blurriness

Phase 3. ICTAL (actual seizure

Absence
Focal
Tonic Clinic
Tonic
Clonic
Myoclonic

Phase 4. POST ICTAL

The postictal state is the altered state of consciousness after an epileptic seizure. It typically lasts between 5 and 30 minutes, but can last hours to days in more severe seizures, and is characterized by drowsiness, confusion, nausea, hypertension, headache or migraine, and other disorienting symptoms.

Are you seeing a Neurologist or Psychiatrist?
Best of luck,
Jake

@passang
I would recommend a MedicAlert bracelet over a Seizure Response Plan. The bracelet is easier to spot and is capable of more information and it’s always with you.
Any information wherever it is certainly is better than none.
Jake