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Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (14)
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Replies to "I received quite a lecture from Mayo clinic. I had decided on my own to treat..."
"I received quite a lecture from Mayo clinic. I had decided on my own to treat myself with my wifes dexamethasone."
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You can probably imagine the lecture I received when I told my wife's primary care doctor that I had been taking Prednisone for 20 years for "all kinds of pain." When she asked who my primary care doctor was, I told her that I didn't have one which was why my wife brought me in.
My wife wasn't very helpful as she just sat there telling me not to leave out any details. If I did, she filled in the details for me.
When it was all said and done, I left without a prescription for prednisone which was all I wanted. I got a referral to a rheumatologist instead.
At least I was taking leftover Prednisone that was prescribed to me, My ophthalmologist prescribed boatloads of Prednisone every time I had a flare of uveitis. My ophthalmologist was only worried about my eyes and eye pain and he never asked me about all over body pain.
I had been seeing a neurologist for trigeminal neuralgia (TN) until they said TN wasn't treated with Prednisone because of side effects. I stopped seeing the neurologist and took Prednisone for TN too. There was no amount of Prednisone I wouldn't take to make the TN attacks stop. Of course, treating myself with Prednisone only delayed the TN surgery that I had by about 20 years. Nobody knew TN was still a problem. The surgery actually stopped those TN attacks.