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MAC & Bronchiectasis | Last Active: 2 days ago | Replies (35)

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@rmoore901

Good morning. Do you mind sharing the side effects from the vfend and how long that is prescribed for? I’m about 7 weeks into Cresemba for the aspergillis and it’s been rough on top of the daily big 3. Good luck with everything. Hope you can clear soon. Also agree with you about a trip to NJH from California as well - have definitely considered that myself.

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Replies to "Good morning. Do you mind sharing the side effects from the vfend and how long that..."

I will jump in to respond as I have taken voriconazole twice for 12 months at a pop. I had no side effects either time while taking voriconazole but several weeks afterwards both times my thumbnails raised from the nailbed and split ( but grew out in time) and my hair started falling out which also resolved itself after around 4-6 months. I never felt badly, however....only these 2 weird side effects.

I have been taking vfend since Feb 21st, I was at 300mg 2x a day, 2 weeks ago I went up to 400 2x a day. The side effects I've had are photosensitivity, confusion/forgetfulness, and seeing things about an hour after the dose. In the hospital I was hallucinating when I they would give it to me but I have no idea if that was from drug interactions. I also get sun burnt easily, 10 mins in front of the hospital window and I was already red, so I stay covered.

When I say hallucinating I mean very slight visual stuff, someone would be sitting in front of me and it looked like I needed to clear the air, similar to someone vaping. At home it has not done that. I get flashes of lines, shapes etc if I look at my tv or phone when it's off. That goes away fast (about an hour). As far as confusion sometimes I will be talking and completely forget what I'm about to say, and go into another room but forget why I went there. I've done that occasionally before, but this is several times a day. In all I think it's a great drug and clearing up my aspergillosis well.

I believe the standard treatment is 4-6 months, but varies because everyone has different conditions. Because I'm doing that and mac treatment I may have to take it longer.