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@pamelastewart5

We haven't started Epidiolex yet because yet another form needs to be filled out by the neurologist. Once we do start, I will report on my son's progress. He had atonic seizures as a toddler, but now he only has grand mal seizures when he sleeps. We are grateful for that–many fewer injuries! He has tried many different med without success, so we aren't expecting a miracle. But. . .hope dies hard! And we are hoping for the best.
Thanks for your info, Jake. You know a lot!

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Replies to "We haven't started Epidiolex yet because yet another form needs to be filled out by the..."

@pamelastewart5
Hello,
I’m sorry your son is having Nocturnal Tonic Clonic Seizures. Does you son have an anti-suffocation pillow? Thank you for keeping us informed. I’m curious how well this medication works with Lennox-Gastaut syndrome. There was a lot of hype that Epidiolex was going to be the next Epilepsy wonder drug, unfortunately it hasn’t been as effective as thought. Fingers crossed it will work for him.
Blessings,
Jake