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DiscussionLiving with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Replies to "We haven't started Epidiolex yet because yet another form needs to be filled out by the..."
@pamelastewart5
Hello,
I’m sorry your son is having Nocturnal Tonic Clonic Seizures. Does you son have an anti-suffocation pillow? Thank you for keeping us informed. I’m curious how well this medication works with Lennox-Gastaut syndrome. There was a lot of hype that Epidiolex was going to be the next Epilepsy wonder drug, unfortunately it hasn’t been as effective as thought. Fingers crossed it will work for him.
Blessings,
Jake