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How do I get doctors to take me seriously about a potential CSF Leak?
Spine Health | Last Active: Apr 19 6:58pm | Replies (16)Comment receiving replies
My ongoing symptoms continue to worsen, most days it’s hard to even function properly. From the time I wake up until the end of the day I experience nausea, headaches, dizziness, visual disturbances, changes in hearing, clicking in the ears, loss of balance, muscle weakness, facial/body tingling, problems with concentration, memory loss, bitter metallic taste, a rain drop sensation throughout my body, and etc. However, my concerns are brushed off with no sense of seriousness in what I’m experiencing. I’ve been overlooked for so long as I continue to suffer and feel as if I’m being neglected of a serious ongoing issue. If anyone has any recommendations or resources of providers who will be committed to helping me please reach out. Advocating for yourself is so tiring, I’ll continue to pray and keep my faith strong. One day it will all make sense for the glory of God.
Replies to "My ongoing symptoms continue to worsen, most days it’s hard to even function properly. From the..."
Hi there. I'm sorry you're struggling.
Mayo sent my bff, who had an unusually severe CSF leak, to Duke. Apparently they are The Place To Go.
https://radiology.duke.edu/patient-care/specialized-services/spinal-csf-leak
I hope you know about the Spinal CSF Leak Foundation. 👍🏼 Here's a page from their website; it lists a few resources --
https://spinalcsfleak.org/resources/resource-documents/
I hope you're able to get the relief you need! Hang in there sweetie, you're not alone
🌻🫂🌞
Lauralai
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Dear jordanametepe @jordanametepe,
xxx SORRY... xxx
I'm so sorry of what you do "ongoing symptoms continue to worsen, most days it’s hard..." Being "sorry" is one way but people problems is "hard". I'm there too.
xxx PROBLEMS? xxx
My balance problem killed my walking. My leg on the bottom of my right-foot causes - no pain, thankfully - little feeling. that causes falling onwon and hits my brain. That happens like the last 3 months; before this happened many times over the last 2+ years ago. It os few now as I exercise my right-leg. There is a little more of what i do that the last 12 years now and ago and i've written - several times - on MAYO.
xxx OTHER PROBLEMS... xxx
Other problems for you, including:
1. Balance problem
2. Headaches
3. Dizziness
4. Muscle weakness (I'm back of stretching, lifting - thankfully)
5. Brushed
6. Memory loss (my memory and ability is 80% gone from my accident 12 years ago)
7. concentration (even i dont understand that word)
8. and the other words...
Hearing of what you wrote is not to undesrtand of this. Other pros can help you 🙂
Tjx,
Greg D. @greg1956