← Return to Living with epilepsy - Introduce yourself & meet others

Discussion
Comment receiving replies
@djsmom

Ok you found info I haven't! She has progressed from the cationic to grand mal with puberty...her pediatric neuro has been great up until now. He was hesitant with answers and it scares me! She takes 200mg of lamictal twice a day 20 mg aderall in the a.m. and only if she's in school. A .2mg clonidine at nite. 10mg diastat for when seizures happened. That worked for the most part, had the occasional break thru seizures but the diastat stopped them instantly it seemed. Since puberty really hit about a yr ago, she was a premie, 3lbs 12ozs, was told we'd have some deveopmental delays, they turned into grand mals and it requires an er visit because the diastat failed. Now her neuro added a 500mg keppra halved given a half in the a.m. and half p.m. she's shown the aggressive personality you mentioned. She's hot headed anyways but it is bad since the added meds 8 days ago tonite. amy advise is greatly appreciated!! Thank you so much for responding to me! I feel so useless to her and I'm so frustrated!!!! I can't fix it!!! This is my baby, a mother sees about her children. We also have a 14 yo son that has no medical issues other than pollen allergies...he lives thru it with us in fear of the next one. I'm sorry so lengthy or spelling or whatever, I kind of just poured it all out there. Thank you so very much again! I'll stop here for now.thank you
Dj's mom

Jump to this post


Replies to "Ok you found info I haven't! She has progressed from the cationic to grand mal with..."

@djsmom
You mention “I feel so useless to her” and “I can’t fix it” I think all parents feel like that. But what can parents do? All things considered doctors and pharmaceuticals do a fairly good job. About 7 out of 10 seizure patients are controlled on meds. Of course that’s not helping your daughter but don’t give up. Hope the Keppra works and her seizures are controlled. About 70% of Epilepsy patients have Idiopathic Epilepsy will never know the cause of their Epilepsy. I don’t understand why she is taking Clonidine? Does she have ADHD or anxiety? Since Diastat is a rescue medication I assume she is having cluster seizures. How often do you administer Diastat?
Hope the Keppra works soon and her dose doesn’t have to be increased too much.
Blessings,
Jake