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Good morning, Gus (@gus0557)
I had to do a measure of self-dianosing before I was able to assign my PN as idiopathis large-fiber PN. I'm not blaming my neurologist for giving me more specifics; he did use the work "idiopathic," but didn't get ito the business of large-fiber vs. small-fiber. I sat in on a slew of Foundation webinars and read a sheaf of PN articles (mostly Mayo, Cleveland clinic, and NIH) until I was able to put two and two together (no pain, but awful balance). To me that sounde like large-fiber, so when I next saw my doctor I asked him: 'Is it more likely my PN is large-fiber?' He said it was, and went on tho add other qualifiers like 'polyneuropathy' and 'sensory predominant.' So, through some self-diagnosing, I was able to get a better handle on my particular PN.
My best to you!
Ray (@ray666)
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Good afternoon Ray,
Thank you for your reply. And if you would like to find out the status of healthcare, you really should read the book "Compassionomics" by Drs. Stephen Trzeciak and Anthony Mazzarelli. It's a major eye opener. Unfortunately and sadly, doctors do not listen to their patients as they should and show a massive lack of compassion. Believe me I realize quite well what I am saying since I work fora family practice at Summa Health in Akron, Ohio. Practices are more concerned with quantity and not quality of care. We see an average of over 100 patients on a daily basis. Therefore, the patients are left guessing and having to search for themselves.