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Living with epilepsy - Introduce yourself & meet others

Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)
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@kimberly1967

My daughter has been having sezuire' s since she was 11 years .
Since that time we have been through so many Ct scans and have repeatedly been told that no one can understand why she has them.
We have had her medication changed up so many different times it seems so unreal.
The last 3 years her episodes have progressed.
She is no able to work (( X Ray Technician. )
I had heard about a producer which a small electronic devices is incerted into her body which will help to stop her episodes.
Has anyone here had or know someone who has went through the steps and most importantly has it help ?
Thank you in advance

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Replies to "My daughter has been having sezuire' s since she was 11 years . Since that time..."
Lisa Lucier | @lisalucier | Apr 15, 2019

Hi, @kimberly1967 - welcome to Mayo Clinic Connect. You may have noticed I moved your post to this existing discussion, "Living with epilepsy - Introduce yourself & meet others" so that you can connect with other who have experience with epilepsy themselves or with someone close to them. Simply click VIEW AND REPLY in your email notification to get to your post.

That must be so hard to go through all those scans with no explanation of why your daughter may be having seizures, and also with her episodes progressing. Very difficult she can no longer work in her job with this.

Hoping others in this thread can answer your question about a device to help control seizures. Are you perhaps thinking of vagus nerve stimulation (VNS) https://www.mayoclinic.org/tests-procedures/vagus-nerve-stimulation/about/pac-20384565?

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