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DiscussionLiving with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Replies to "Im really not sure the triggers.. did u know your triggers and what is your aura?..."
@nadinen I have a hard time describing my auras. They happen in my stomach. As I look back on things and after reading and research I can understand why doctors said I had anxiety, what I was saying sounded just like all the symptoms of anxiety. There really was no pattern as to when they happened, anytime of the day or night. So, I kept a diary of all my activity prior to each one happening.
After doctors and technicians reading that and then having me stay inpatient at the epilepsy center they tried to replicate all things I was doing that they thought were significant. I still don’t understand if they were able to trigger one or if I was just incredibly lucky that they were able to record one.
Anything is worth a shot. Is there an epilepsy center near you? Maybe by writing down all your activity you might see a pattern and doctors might be able to capture some activity. This will require a great deal of patience but it might pay off.