@nadinen
I was working on a reply to you but wanted to say a little something regarding your fear.
But first I have had over 13,300 seizures in my life. You absolutely cannot live your life in fear of the next one. YOU CAN’T! Fear can be very destructive, don’t allow it to be. It’s a total waste of time and effort to worry about things you have NO control over. Besides, what good does it do? Let me answer that for you, IT DOES NO GOOD. Did you ever think of the harm your worrying may do? It’s even possible your may be causing some of your own seizures. That theory isn’t as far fetched as you May be thinking right now. Fear, worry, stress, anxiety have been proven to be major seizure triggers. You need to enjoy your life. Live your life with gusto.
Sure you need to be cautious of certain things. If you have Tonic clonic Seizures you shouldn’t take a bath without someone with you. In the shower you should have a thermostat installed so you don’t accidentally scald yourself. Always have someone with you when swimming. Using elevators instead of stairs. Just go out there and live your life like every day is the first day of the rest of you life and if you have a seizure so be it. Shake it off and move on.