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@nadinen

The problem is i have had mri and eeg and no results..ever.. nothing ever shows..

I even did a sleep deprived eeg.

I am worried to do these again and be told i am just hallucinating or have anxiety..

I am tegratol i think it is controlling the seizures very well but the auras.. maybe i should change my drug? However i am too scared to try this

Did they tell u a aura is a seizure... or could these be side affects from medications.. i am very lost, i just want answers 🙁

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Replies to "The problem is i have had mri and eeg and no results..ever.. nothing ever shows.. I..."

Me too. I had years of these same tests with no results, I understand how you are feeling. I was so angry with the medical world.
Is there something that you know will cause these auras?
When I was at Mayo, they listened to everything I was saying, hooked me up to an eeg 24/7 and recreated situations best they could to bring on an aura or seizure. Took a couple of days. That’s how they were able to capture it.
They said an aura is essentially a warning that a seizure might occur. It is not a seizure in itself.
Have you gone elsewhere to get another opinion? I actually went to Mayo for a long time without ever discovering anything and being told I had anxiety. I kept pushing them and they finally set up appointments with neurologists that found out what was happening. You have to be your own advocate, be strong and positive. They aren’t experiencing what you are and rely on tests to disprove you. I actually broke down crying in the doctors office one time with both the doctor and nurse in there. I told them I felt this would never be solved; the nurse told me they wouldn’t stop until it was solved. That was the turning point for me.
I also have heart problems, a very fast heart rate. Just a couple years ago I was in a cardiologists office with him telling me that it was anxiety. The next day I went back and told him I wanted another opinion. He relented and sent me to a doctor specializing in fast heart rates. That doctor confirmed what I was telling him, treated me for a fast heart rate which is still under control today.
Sorry for the long response. Just sayin that being your own advocate helps.