← Return to Living with epilepsy - Introduce yourself & meet others

Discussion
Comment receiving replies
@lisalucier

Hi, @nadinen, and welcome to Mayo Clinic Connect. I can imagine that would be quite a change from having no seizures in 5 years to now having them three times in one day.

You'll notice I have moved your message to this existing discussion, "Living with epilepsy - Introduce yourself & meet others" in the Epilepsy & Seizures group. I did this so that you could talk with the members in this conversation who've had experience with epilepsy. If you click VIEW & REPLY in the email notification, you can scroll back through the past and recent posts.

Members like @dawn_giacabazi @jakedduck1 @isalenamom@debvat @aroman @techi and others may have some thoughts on experiencing the auras you mentioned. They also might have input on your sense that the feeling you've described before having a seizure might be interpreted by your doctor as anxiety.

You mentioned being sick of living life in fear. What would you say is making you most fearful at present?

Jump to this post


Replies to "Hi, @nadinen, and welcome to Mayo Clinic Connect. I can imagine that would be quite a..."

Well yes it was an outburst of 3 in one day then it never happened again but had so much auras since.. its frustrating because u take extra precaution of having a seizure for no reason so you feel fear and worry all the time

Ive googled a million things and became too obsessed with trying new diets or cutting things out so i can see if it makes any difference but it all just comes back every few days anyways... i kept a diary of everything and i see no pattern. Its hard not knowing what causes these shocks ...mainly when i first wake or in the afternoon..

Im trying to stay positive now because i dont want epilepsy to take over my life anymore. I worry more than having the actual seizure which shows its become too much..