I am a 24yr old female.
I am looking for some help.. i feel no doctor understand what is wrong with me
I have had epilepsy since around puberty.. around age of 12 when i got my period... i had alot of seizures until i was finally controlled on tegratol 200mg
Throughout my teenage years they decreased
When i married and fell pregnant i was a doctor lowered my dose to one pill 200mg only at night. This was because i had no seizures for atleast 6monthes.
Then i had no seizures for 5 years.
Now i am 24 suddenly i had 3 seizures in one day. I was taken to hospital and given a magnesium injection
This was 2 monthes after giving birth and not getting periods back due to breastfeeding..
I made myself sick fearing to eat anything or stress myself as i never knew what triggered it.
I visited a neurologist,he said my dose is too low. He said take 200mg at night and 300mg at night because i mainly get seizures when i wake..
Anyways through all of this i get symptoms of seizures throughout the afternoon and night and when i wake... so i get alot of auras but no seizures.(the feeling before i get the seizure) Ive had this problem since ive had epilepsy
How would i get rid of these auras??
My doctor seems to be confused and says its just anxiety but i know what im feeling. And it is the same feeling before my seizures (electric shock feeling in my right thumb)
He wanted to put me on xanax..
Do i need this much medication?? When i used to have seizures i would have only one in a day but after having 3 in one day i got worried
I have had multiple eeg and mri and they never find anything..
Please if you can help me.. i am sick of living life in fear
What would you advise me to do..
Hi, @nadinen, and welcome to Mayo Clinic Connect. I can imagine that would be quite a change from having no seizures in 5 years to now having them three times in one day.
You'll notice I have moved your message to this existing discussion, "Living with epilepsy - Introduce yourself & meet others" in the Epilepsy & Seizures group. I did this so that you could talk with the members in this conversation who've had experience with epilepsy. If you click VIEW & REPLY in the email notification, you can scroll back through the past and recent posts.
Members like @dawn_giacabazi @jakedduck1 @isalenamom@debvat @aroman @techi and others may have some thoughts on experiencing the auras you mentioned. They also might have input on your sense that the feeling you've described before having a seizure might be interpreted by your doctor as anxiety.
You mentioned being sick of living life in fear. What would you say is making you most fearful at present?