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I recently had surgery to remove NET in small intestine

Neuroendocrine Tumors (NETs) | Last Active: May 12 7:42am | Replies (43)
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Profile picture for sanarpin @sanarpin

Stay positive, I had 15 years ago nec in my small intestine, surgery sucesfully but secondary effect Diarrea, since 4 years ago found liver cáncer inoperable, treatment lanreotide injection per month and 4 cicles of PRRT LUTHATERA-177 cancer stable, two years ago breast cancer small tumor test.. estrogen positive all hhis cancers was about hormonal teraphy. You can found experts in PRRT. I am in Houston and Excel Diagnostics apply me 4 doses of Luthatera, finish 2 years ago, now is a little bit grow one tumor and have two more sessions of Luthatera, but I am waiting for prrt Alphamedix to be approved for FDA. But I never give up snd I feel very well

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Replies to "Stay positive, I had 15 years ago nec in my small intestine, surgery sucesfully but secondary..."
Teresa, Volunteer Mentor | @hopeful33250 | May 12 7:42am

Hello @sanarpin and welcome to the NETs support group on Mayo Connect. I'm glad that you found this forum and are sharing your experiences. Shared patient experiences are so helpful when you are dealing with cancer and especially a rare cancer like NETs. It sounds as if the treatments have been helpful to you.

I had my first surgery for NETs over 20 years ago and have had two more surgeries since then. While I've never had carcinoid syndrome, I have had weight loss and a poor appetite. At this point, surgery has been the only treatment that I've needed.

I'm glad that you said, "But I never give up and I feel very well." How is your appetite, have you lost weight?

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