@isalenamom
I’m happy to hear your seizures are controlled. But sorry to hear of your daughters issues. I took Dilantin also for over 30 years. I have Neuropathy from my feet to just above my waist as a result. I’m curious about what side effects your daughter had on Zarontin and when did it start. Did she have depression on Zonegran, Zarontin and Keppra?
Does your daughter fear having another seizure? Does she accept the fact she has Epilepsy? I’ve had Epilepsy for over 50 years. Since I was 15. In the very beginning it was no big deal. As the seizures changed to Convulsive Status, they increased in intensity and frequency and I was put in medically induced comas for weeks to months on end. I couldn’t cope with it and I had had a nervous breakdown. Stress is a major seizure trigger so anything that can be done to reduce it should help. Do you know what is causing her anxiety? Just like in Epilepsy it’s important to recognize your triggers in anxiety as well. Perhaps if she saw a Psychologist to help her recognize her irrational thoughts and how to overcome them, just maybe her seizures would stop or at least ease up.
Considering her difficulties with medication you may want to try Pharmacogenomic testing. Below is a link to the Mayo Clinic which explains it better than I can.
http://mayoresearch.mayo.edu/center-for-individualized-medicine/drug-gene-testing.asp
I wish you both the very best of luck and hope you remain controlled and your daughter is controlled soon.
Blessings,
Jake