← Return to Living with epilepsy - Introduce yourself & meet others

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@lisalucier

Hi, @isalenamom - welcome to Mayo Clinic Connect. Thanks for sharing about your own journey with seizures and taking phenytoin (Dilantin) and then carbamazepine (Tegretol), and now doing fine. That must be hard to now see your daughter with anxiety-induced absence seizures and having so many issues finding a medication that controls the seizures without causing extreme depression for her, .

I'd like to introduce you to @jakedduck1 @dawn_giacabazi @aroman @mythreeguys @kelliann, who may have some input for you as you seek some answers for your daughter and what to do next for her.

How are things going with the perampanel (Fycompa) so far?

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Replies to "Hi, @isalenamom - welcome to Mayo Clinic Connect. Thanks for sharing about your own journey with..."

@lisalucier Thank you! Because of side effects, my daughter has been taken off of the Fycompa. She was getting extremely angry, kept falling and was having panic attacks which of course triggered more seizures. The doctor is going to try her on Vimpat. The poor girl seems to have so many negative side effects for all these meds! Praying this will help!