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← Return to Multiple System Atrophy
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Brain & Nervous System | Last Active: 8 hours ago | Replies (15)
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Yes the Neurologist has ordered a Syn-One Skin biopsy test, but we already are dealing with what we know to be the truth. I don't feel at this point we need it, but if you are in the early stages, by all means you need to find out what is going on. I haven't talked about all of it..swelling legs, the rash looks like a 3rd degree burn, the falling and he will NEVER tell me he has run out of diapers again. There are other developments, but I would like to talk to the DR.
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Shelly, I looked up the rash name, and it looks like it’s an autoimmune type rash. I have several autoimmune diseases, but I’ve never seen anywhere that they are connected to MSA. I’m sure that rash as you described it is very miserable for him and for you. If you can arrange it, think about getting some help so you can preserve yourself. No patient wants the one they love to make themselves ill caregiving. Also, if some of the bigger things like showering, etc could be managed by an outside caregiver there might be more time to enjoy each other’s company and walk down the memory lane of old days. Keep in touch. I’m praying for you both. ❤️