Hang in there all you pancreatic cancer survivors (my wife) and all you care givers and support team members (me). My wife was diagnosed Oct '22. Six first line. Whipple 3/1/23. Six more first line (3 with, 3 without oxoli). Rang the bell 8/23. Came back 4/24.
Walked in our first PurpleStride last April. We'll walk again this Saturday 4/26. 60 cities will walk on Saturday. Find one. There are a lot of us Pancreatic Cancer family members out there.
We failed our two lines of treatment. Scheduled EBRT (SBRT was not an option). Went to Hawaii. Took the granddaughters out of school. They are the best medicine ever! 20 days of radiation. 4/ 25 CT scan found 30 new < 1 cm spots on what used to be a clean liver. (1/25 CT, 3/25 PET both showed clean liver). Clinical Trial is our Hail Mary.
I read somewhere that they said First line with Oxoli worked but the neuropathy was too tough. But it worked. I agree. The CA numbers were all great when we were using Folfirinox. Had to stop after 9 treatments. Folfiri was more tolerable but probably not as effective. Is there a way to have Folfirinox with lesser amount of Oxoli? Btw, Gemabraxine/2nd line temporarily worked great for us. Reduced then kept the CA down for 4 months, then CA started back up. Her taste came back with Gemabraxine! She gained weight. Hawaii was an option at that point.
Hang in there!
Team Toke