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Thank you. His illness began in 2021 with constipation, urinary and prostate problems. Everyone ran to address the prostate problem and not anything else. He thought the flomax they put him on was making him dizzy. Well. to shorten things, his prostate went back to normal. We found a Doctor who sent us to a wonderful neurologist and here we are. My husband is 52. He can hardly walk and talk. He has started shaking a bit and has developed a rash called bullous pemphigoid. He can still eat!! The Neurologist had given me a sticky note with 2 possible diagnosis and my husband fit the diagnosis of multiple system atrophy to a tee. You are right, it is very rare and not easily diagnosed. A skin graft is the next test. He has been through everything else. Our thoughts are with you and please if we can help, let us know.
Replies to "Thank you. His illness began in 2021 with constipation, urinary and prostate problems. Everyone ran to..."
Hi, I am a new member to this site. I was previously diagnosed with myasthenia gravis, and sent to the specialized center at Upstate Medical in Syracuse. To my surprise, they diagnosed two things going on in me: MG and to my surprise MSA because the symptoms are exactly as you describe. The loss of site initially and then general, overall profound muscle weakness were the two symptoms that fit MG; all the others (incontenence, drooling, tremor, balance issues, shuffling, etc. fit MSA exactly. I’m working at adjusting, but it is not easy.
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Are you talking about the Syn-One Skin biopsy test or something else? I’ve been told by some good doctors I don’t have it, but I think I do, nothing else would explain the diverse symptoms I have including orthostatic hypotension. I have plans to get the Syn-One test, but then again, it’s not without error. So here we are. Does your husband have any autonomic symptoms like heart rate, erratic B/P, sweating or not sweating? It’s a lot to deal with, isn’t it?