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@jakedduck1

@davidinvegas
Hey there David,
I know exactly how you feel and what your going through. BUT, don’t you EVER be embarrassed (okay a few exceptions here) or ashamed that you have Epilepsy or have seizures, and that’s an order!!! The last thing that’s needed is one more person perpetuating the stigma already associated with Epilepsy, especially if it’s from one of our own. My friend in Birmingham, England had a Focal Impaired Awareness seizure in McDonalds where she removed all her clothes. She never would have known had the police or friend not told her what happened. I’ve had Epilepsy for 52 years. I’ve had well over 10,000 seizures and have been found in every conceivable place. There is virtually nothing we can do to prevent them, like it or not, we’re going down regardless of what we’re doing or where we are at. There will unfortunately always be more than enough ignorant people to keep the stigma going strong. Please don’t help them David. As far as confidence and seizures are concerned I understand it’s hard to be confident over something you have no control over. I’m assuming you live alone. You were courageous moving to your condo and that courageousness had to give you confidence to some degree. You are a very courageous fellow and I have great respect and admiration for your accomplishments. I’m sure if you think about it you’ll realize just how confident you really are. I’m curious if you may have ‘confidence’ and very realistic ‘fears’ mixed up. Anyone with Epilepsy living alone faces innumerable potential dangers and those fears and dangers only escalate when you go out in public. But like all diseases, disorders, conditions or syndromes life goes on. If you have a seizure get up when you can dust yourself off and continue along life’s journey, but you have to accept your limitations too.
If you live alone you might consider a roommate. Do you have a seizure pillow? What type seizures do you have? What meds are you on? Ever had VNS surgery or other treatments? How often do you have seizures?
Wishing you health happiness and a seizure free future.
Jake

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Replies to "@davidinvegas Hey there David, I know exactly how you feel and what your going through. BUT,..."

@eallank you for your words. They are conforting. I do have a lot of worry outside of medical ones. I took care of mom for close to 5 yrs till her passing, she did her very best to take care of me. I've never wanted to apply for disability but I feel it's time. I've been seeing the same Neuro for about 12yrs. We are looking into vns but pacemaker needs looked at first. I have a roommate that I have known for 35yrs. I'm renting a room to him but there has not been any financial contribution on his part at all. Come January I will be owed over 3000$ from him. The little bit of money left over after selling moms and buying condo is gone. Boy he has it easy. Bad to mix friends and business, one always wins. I'm taking briviact, lamotrigine, vimpat, ofi, and lorazepam if I get that feeling. I do sometimes. I'll have some really weird feelings and maybe some small seizures. Most of the time I will just wake up in hospital. I'm getting very afraid of the missing time, the darkness of what happened. Ya I don't have seizers everyday but they are bad. So much damage to the rest of my body. My roommate has been here to call ambulance 2x already. I'm very uncomfortable having him here though. He is more comfortable than me. I have spoke with roommate, I won't complain but if I need to complain I usually loose my temper. Roommate brought up how lucky I am that he was here during my last seizure. To bad it was during a financial conversation. I don't like him here. It's a shame I'm not comfortable in my own house. It's going to cost money I don't have to have him evicted. Now my wife xwife what ever is unwilling to help until money starts coming in on my side. I don't blame her. Can only live a day at a time, trying to end with a smile and start morning with one. Order is received and will be obayed. Thank you for your words of wisdom. Being dependent on only myself is a lot tougher than I thought. Like a child mentally.