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hello,
I was recently diagnosed with large fiber peripheral neuropathy along with cervical and lumbar radiculopathy. My diagnosis came about a year after initial onset. I don't know if my condition can be labeled idiopathic neuropathy since the neurologist clearly told me that the large nerves in my legs are not working correctly. I can tell you that from the initial onset and up till now, my neuropathy has progressed from just some tingling on the bottom of my feet to tingling, numbeness and a lot of pain where I get to the point I can't step on the bottom of my feet. The tingling and numbness have worked themselves up my legs to the calves. I hope the pain remains only on the bottom of the feet. I see the neurologist for the second time beginning of May after having had addidtional tests both in March and in April. I have tried so many nerve and epilepsy medications prescribed by many doctors so far, but nothing has worked. My primary care physician told me to stop all medications back in January of this year and I was referred to specialists at University Hospitals in Ohio.
Neuropathy is defnitely a very chaotic and disrupting condition. I hope the neurologist will be able to start some treatment to just alleviate some of the pain and slow down the progression.
Replies to "hello, I was recently diagnosed with large fiber peripheral neuropathy along with cervical and lumbar radiculopathy...."
Good morning, Gus (@gus0557)
I had to do a measure of self-dianosing before I was able to assign my PN as idiopathis large-fiber PN. I'm not blaming my neurologist for giving me more specifics; he did use the work "idiopathic," but didn't get ito the business of large-fiber vs. small-fiber. I sat in on a slew of Foundation webinars and read a sheaf of PN articles (mostly Mayo, Cleveland clinic, and NIH) until I was able to put two and two together (no pain, but awful balance). To me that sounde like large-fiber, so when I next saw my doctor I asked him: 'Is it more likely my PN is large-fiber?' He said it was, and went on tho add other qualifiers like 'polyneuropathy' and 'sensory predominant.' So, through some self-diagnosing, I was able to get a better handle on my particular PN.
My best to you!
Ray (@ray666)
Hello guys. Did your physician ask if you were a drinker.
Our nerves are coated with a fat called MYELIN. Depending on how much B12 is circulating, myelin is continually replaced. But myelin is sometimes removed or dissolved by alcohol faster than it can be replaced, then nerve pain results. Alcohol does not dissolve fat stores as they have no blood cursing thru. Nerves have alcohol rich blood flowing past them sweeping their insulating myelin. Suggest taking 1000 micrograms METHYLCOBALAMIN , that's B12, daily. And nil alcohol.
James,82 NZ
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If the cause of damage to your nerves cannot be identified, it is called idiopathic, which means unknown pathology.