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When will my sense of taste and smell return?

Head & Neck Cancer | Last Active: May 2 8:33am | Replies (11)

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@rockshopgirl

Sino Nasal Undifferentiated Carcinoma. I underwent radiation treatment to help shrink a mass in my nose and throat. I lost all my sense of smell and taste. After about a month I regained my sense of smell, and some taste. It seems sweets have come first. Still waiting for the salt taste to come back. Foods have been tasting bland and I struggled with eating for some time. Lost weight and still continue to. Which I cannot afford. Still trying to do my best. Been also dealing with headaches for the past week and a half. Been through so much already, I denied doing radiation again. Worried I still need it, but don’t know that I can go through it again.

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Replies to "Sino Nasal Undifferentiated Carcinoma. I underwent radiation treatment to help shrink a mass in my nose..."

Hi @rockshopgirl Welcome to the Head and Neck group. No doubt the radiation has done damage to your noggin, which will take months/years to heal. I think sometimes our life during recovery is focused primarily on eating, issue management, and dealing with pain in a relentless cycle. Improvement is often so slow it can be unbearable at times.
As far as possible need of additional radiation, Proton might be your better choice as it is pinpoint, resulting in less side effect damage.
If you need advice or an ear to bend, likely someone is here on this feed to help out. Knowing you are not alone in this battle can be a great help at times. I’m twenty-four years out, doing well, but never back to original condition. Still the green side of the grass offers a better view than the alternative. Good healing and courage.

When my weight started to plummet during radiation/chemo early 2024 for laryngeal squamous cell cancer, nurses at Kaufman Cancer Center in Bel Air MD suggested 4 bottles of high calorie Ensure daily along with 64 oz liquid daily. This was not easy as swallowing was painful, however; this proved to be successful in stopping weight loss and even gaining weight back. Good luck and prayers for you.