I got sick with similar symptoms-really bad balance issues, nausea, vomiting, fever, extreme fatigue, trouble moving my arms and legs properly, and vision problems like blurry and double vision. I also had some issues with my autonomic system-like heart rate, digestion, and bladder function.
I had similar treatment to your husband, but instead of IVIG and antibiotics, I got plasma exchange(plasmaferes). After that, I started on Rituximab infusions every six months as a preventive treatment (which has worked well for me). I also got high-dose steroids-first through IV, then as tablets-which were slowly tapered off over six months.
While tapering off the steroids, I slowly started to feel better. But I did catch a few small infections (just regular colds), and every time that happened, my symptoms would get worse again instead of better. My doctor called those “pseudorelapses”. Luckily, once the infections passed, the symptoms eased up again and recovery kept moving forward-just really slowly.
Recovery has been a long, bumpy road. It’s been hard to notice progress sometimes, and when I got sick with something else, it really felt like I was going backwards. I still deal with a lot of fatigue and need to rest and take breaks every day, even though it’ll be two years this summer since I first got sick. So it’s definitely taken time, and it hasn’t been a straight line. I’ve tried to keep up with physical activity, even with the balance issues, movement problems, and fatigue. Now I’m finally starting to feel more like myself again, although the fatigue is still very present and I also still have some nerve-related stuff-like tingling and occasional muscle twitches in my legs and feet.
Really hope your husband doesn’t have any more relapses and that he starts feeling better!!