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@mmaryemc

I'm sorry to say the doctor says her seizures have not stopped. They've given her so much medication it has kept her in a coma. They say they had to to keep her from brain damage. Now they're afraid she may not wake up. The medication affected her liver terribly so she came close to liver failure. They say she's a special case they've never seen anything like before. I tried desperately to get them to contact the Mayo Clinic in Rochester but the doctor said he has his own specialist he's been in contact with. I've come so close to being defeated and broken and I can't bear to see my little granddaughter like that. But I refuse to give up hope. With prayers from kind people like you I know she can come back. Thank you so much for caring.

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@mmaryemc
Hi Mary, Are you familiar with the Stanford University Medical Center and Medical School in California? Anyway they are also a level 4 Epilepsy Center. Stanford has a Children’s Center. I was told Mayo Clinic only treats people 16 years and older, at least at the Epilepsy Center. I’m skeptical if I was given the correct age information or not.

You may want to contact the Lucille Packard Children’s Hospital a part of Stanford Medical Center.

https://www.stanfordchildrens.org/en/service/epilepsy

May God be with you Talia, Mary and your entire family during these terrible days.

Jake