← Return to Living with epilepsy - Introduce yourself & meet others

Discussion
Comment receiving replies
@michele0161

I wanted to update you all on our visit to my 31y/o son's neurologist appt. It was uneventful at best. Both were the same age and neither one had much to say to one another. Most of my sons records had not been sent to this doctor including the initial MRI that was done after his 1st seizure which I assume is why there was nothing to discuss. They just stared at each other until I began to ask basic questions. Then I brought up the side effects he was having with Keppra and the fact that it wasn't controlling his seizures adequately which seemed to get the ball rolling. All in all it was like pulling teeth!
How is it possible to have such a serious medical condition and receive such inadequate information from a specialist in this field?! I get more direct information from the internet which is very sad indeed.
In the end he was prescribed an additional medication ,oxcarbazepine to supplement the Keppra he already takes. Does anyone here have experience with this drug on its own or in combination with Keppra?

Jump to this post


Replies to "I wanted to update you all on our visit to my 31y/o son's neurologist appt. It..."

My daughter who is 5 takes that. She used to take it with keppra but now takes it with vimpat. I would recommend taking the extended release version which is called oxtellar XR. I found she had way less side effects and only has to take it once a day. Obviously with a 31 yr old he can tell you how he feels which is nice. I kind of have to observe. But I definitely would suggest that!