Hi! My name is Pam and I am the mother of a 40-year-oid son with uncontrolled seizures. They started without warning when he turned 3 (he was "normal" until then) and have continued for the last 37 years. No cause has ever been discovered. He lives at home and has slowly become totally disabled (mentally and physically) as the years passed and the seizures continued. They are when he is asleep 99.9% of the time, so we are fortunate there (less chance of injury). We have tried many anti-seizure medications, many diets (including the very strict ketogenic diet), and many alternative treatments without lasting improvement. For the last 2 years we have been trying medical marijuana, with mixed results. I would love to hear any suggestions/ideas that have worked for others in his situation.
Thanks so much!